Spring 10 | Fall 09 | Spring 09 | Fall 08 | Spring 08 | Fall 07 | Spring 07 | Fall 06 | Spring 06 | Fall 05 | Spring 05 | Fall 04 Title A Bill in Support of SeventyK and Adolescent and Young Adult Cancer Bill of Rights Number 84 Week Bill Entered Committee 03/19/08 Author Senator Shams, Former ASUC Senator Ali Ansary, Adeel Iqbal, Rohan Wagle Sponsor Senator Shams Semester Spring 08 Committee University and External Affairs Status in Committee Passed Status in Senate Passed Original Text WHEREAS, It is recognized that there over 70,000 people aged 15-39 diagnosed with cancer in the U.S. per year; and WHEREAS, For over two decades there has been little or no improvement in survival in this specific age group; and WHEREAS, The Adolescent and Young Adult Cancer Bill of Rights: Adolescent and Young Adult Cancer Bill of Rights We are neither pediatrics nor geriatrics, we have unique needs- medically, socially, and economically. However, the rights and dignity of adolescent and young adults are equal and vital to all individuals. We deserve to have our beliefs, privacy, and personal values respected. Access to care is a right, not a privilege. Our rights, as we perceive them to be and intend to preserve them, are: 1. The right to be taken seriously when seeking medical attention to avoid late diagnosis or misdiagnosis, and entitlement to separate and confidential discussions regarding our own care. 2. The right to affordable health insurance, as well as early detection tests unhindered by insurance or socioeconomic status. 3. The right to be offered fertility preservation as well as current information and research regarding ongoing and potentially lifelong effects of cancer treatment that would affect our fertility. 4. The right to be informed about available clinical trials and given reasonable access to them. 5. The right to untethered access to adolescent and young adult cancer specialists and, when requested, a second opinion regardless of insurance or geographic location. 6. The right to access a social worker or caseworker who is well-versed in adolescent and young adult cancer specifics. 7. The right to “generationally applicable” psychosocial support. 8. The right to have our insurance and position as a student or employee protected by law while dealing with our cancer in order to minimize discrimination. 9. The right to clear explanations regarding the long-term side effects of our disease and its treatment, and to be offered all available and applicable physical reconstruction and rehabilitation options. 10. The right to have all of our treatment options explained to us in full detail, to have our questions answered, and to receive clarification when requested so that we can be an active part of our own care. Preserve our potential. THEREFORE BE IT RESOLVED, that the ASUC endorse and recognize the Adolescent and Young Adult Cancer Bill of Rights. Committee Text WHEREAS, it is recognized that there over 70,000 people aged 15-39 diagnosed with cancer in the U.S. per year; and WHEREAS, for over two decades there has been little or no improvement in survival in this specific age group; and WHEREAS, the Adolescent and Young Adult Cancer Bill of Rights: Adolescent and Young Adult Cancer Bill of Rights We are neither pediatrics nor geriatrics, we have unique needs- medically, socially, and eco¬nomically. However, the rights and dignity of adolescent and young adults are equal and vital to all individuals. We deserve to have our beliefs, privacy, and personal values respected. Access to care is a right, not a privilege. Our rights, as we perceive them to be and intend to preserve them, are: 1. The right to be taken seriously when seeking medical attention to avoid late diagnosis or misdiagnosis, and entitlement to separate and confidential discussions regarding our own care. 2. The right to affordable health insurance, as well as early detection tests unhindered by insurance or socioeconomic status. 3. The right to be offered fertility preservation as well as current information and research regarding ongoing and potentially lifelong effects of cancer treatment that would affect our fertility. 4. The right to be informed about available clinical trials and given reasonable access to them. 5. The right to untethered access to adolescent and young adult cancer specialists and, when requested, a second opinion regardless of insurance or geographic location. 6. The right to access a social worker or caseworker who is well versed in adolescent and young adult cancer specifics. 7. The right to “generationally applicable” psychosocial support. 8. The right to have our insurance and position as a student or employee protected by law while dealing with our cancer in order to minimize discrimination. 9. The right to clear explanations regarding the long-term side effects of our disease and its treatment, and to be offered all available and applicable physical reconstruction and reha¬bilitation options. 10. The right to have all of our treatment options explained to us in full detail, to have our questions answered, and to receive clarification when requested so that we can be an active part of our own care. THEREFORE BE IT RESOLVED, that the ASUC endorse and recognize the Adolescent and Young Adult Cancer Bill of Rights. Final Text WHEREAS, it is recognized that there over 70,000 people aged 15-39 diagnosed with cancer in the U.S. per year; and WHEREAS, for over two decades there has been little or no improvement in survival in this specific age group; and WHEREAS, the Adolescent and Young Adult Cancer Bill of Rights: Adolescent and Young Adult Cancer Bill of Rights We are neither pediatrics nor geriatrics, we have unique needs- medically, socially, and eco¬nomically. However, the rights and dignity of adolescent and young adults are equal and vital to all individuals. We deserve to have our beliefs, privacy, and personal values respected. Access to care is a right, not a privilege. Our rights, as we perceive them to be and intend to preserve them, are: 1. The right to be taken seriously when seeking medical attention to avoid late diagnosis or misdiagnosis, and entitlement to separate and confidential discussions regarding our own care. 2. The right to affordable health insurance, as well as early detection tests unhindered by insurance or socioeconomic status. 3. The right to be offered fertility preservation as well as current information and research regarding ongoing and potentially lifelong effects of cancer treatment that would affect our fertility. 4. The right to be informed about available clinical trials and given reasonable access to them. 5. The right to untethered access to adolescent and young adult cancer specialists and, when requested, a second opinion regardless of insurance or geographic location. 6. The right to access a social worker or caseworker who is well versed in adolescent and young adult cancer specifics. 7. The right to “generationally applicable” psychosocial support. 8. The right to have our insurance and position as a student or employee protected by law while dealing with our cancer in order to minimize discrimination. 9. The right to clear explanations regarding the long-term side effects of our disease and its treatment, and to be offered all available and applicable physical reconstruction and reha¬bilitation options. 10. The right to have all of our treatment options explained to us in full detail, to have our questions answered, and to receive clarification when requested so that we can be an active part of our own care. THEREFORE BE IT RESOLVED, that the ASUC endorse and recognize the Adolescent and Young Adult Cancer Bill of Rights.